Thanks for the input. I think also depression is part of it too.
OMG, I thought it was just me & had often wondered if it affected anyone else this way as I know some can't get to sleep because of the itch-scratch cycle. I have been retired 20 years & worked 37 years having to work sometimes 4β10-hour days so had to be up early and stay later which was a challenge even though I was much younger. The first day off of the 3, I was like a Zombie to recover from that schedule. Being retired now I am a real night owl as I stay up until the bewitching hour of 3 a.m. & lately been dragging it out to 4 in the morn. I have to take an Ambien as I wear a CPAP Machine (which is a PITA) to finally quit worrying about everything (to shut down my mind) to be able to go to sleep & then when my lil' Malchi wakes up I let him out, & then go back to bed and could sleep sometimes into the early afternoon so I really do like it as when I am asleep as also my nerves must also be asleep. I know it sounds cray, cray, but I too feel it is one of the main factors of the dreaded PN and Lichen Simplex Chronicus. Also, a team member mentioned sometime back about not having much of an appetite & my answer was sometimes, but basically a lot of the food I eat will taste funny or not good at all! I truly believe that the PN & Lichen Simplex Chronicus contributes to the loss of appetite or food tasting funny or not good, & the sleep part contributes due to depression from it! Also, my energy is at the lowest to accomplish anything as I really have to push myself to accomplish the needed housework, etc., but contribute most of that to being a real fossil, & some of the old age ailments that go with it. Also, I was diagnosed w/PTSD and OCD, so it has been quite debilitating! IMO, I don't think the skin specialists or FDA realize how horrible that this rare disease can create all these other symptoms & problems! Sorry for the novel but dealing w/this for 15 years on my scalp has just about broken me down, mentally and physically! If the FDA approval time frame isn't until October 2026, I doubt I will be able to experience the much-needed relief as by then I might be taking a real dirt nap, or be in a mental ward, LOL! I know I literally try to make this out to try to be funny, but seriously the stress of it all is killing a lot of us day-by-day as we cannot find any relief whatsoever!π±
I have noticed that I'm more tired but I have other things going on so I'm not sure if it's from PN or something else. Maybe both. ?
I would love to know how to fix it, too!
I am so sorry!!