I have nodules on legs right at back. Just saw new Dermatologist who was excellent!! Froze those on left side of body, injected steroids right side to see which worked best, it’s definitely injected area healing faster & have been pain free since appointment, even took painless shower for first time in at least a year. Think I’ve found the best so far, he was amazing, thoughtful, knowledgeable 🙏🙏❤️❤️

Linda6-i hope you will keep us posted on the injected nodules and how that does long term.💜

I got my arms and back. I got to say that by taking Methotrexate it is greatly improved and no new breakouts. Hope you all remain well.

Last dermatologist visit I’m to increase Dupexent to weekly

Hi Kristi
I've luckily never had the nodules on my private parts -- yet!!
But everywhere else yes!
Just started to get them on my scalp but they are not itchy yet thank goodness- only time will tell I guess
It is a very rare weird scarey itchy painful disease for sure
Even my family doctor had no idea what it was
The dermatologist did a biopsy and finally diagnosed it
They should be teaching this in medical school but I guess GP'S cant know everything they rely on the specialists
Knee surgery is also very painful and serious 💜 I guess it could also depend on what medications you are taking and definitely stress makes it worse for sure🤯
Take care and hang in there
Have a nice weekend