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A MyPrurigoTeam Member asked a question 💭
Floral City, FL
December 14, 2022
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Answer Summary

Members shared deeply personal experiences with painful nodules appearing across their bodies, including breasts, faces, knees, and scalps,... Read more

Members shared deeply personal experiences with painful nodules appearing across their bodies, including breasts, faces, knees, and scalps, with many describing fluid discharge (clear, black, red, or white), extreme pain that affects daily activities like sitting or wearing a bra, and the profound mental health toll of living with unrelenting symptoms. Several members discussed treatments that have provided some relief, including Doxycycline antibiotics for infections, Dupixent injections to reduce nodule size and itching, cortisone injections, Aquaphor ointment for soothing and healing, and lidocaine burn gel, while also noting the difficulty of obtaining adequate pain management and the value of medical marijuana for both pain and anxiety. A recurring theme was the isolating mental struggle of this condition, with members offering solidarity around thoughts of hopelessness, the frustration of dismissive doctors, and the small comforts of humor, loose clothing, and connecting with others who truly understand.

A MyPrurigoTeam Member

Hi. I have had cortisone injections to the nodules that work pretty good. I am going to a new Derm in a couple weeks so will keep you posted on her suggestions. Wishing all if you the best pain free days for the future.

March 6, 2023
A MyPrurigoTeam Member

The mental impact of PN is so intense. It took a long time to diagnosis this with every Dermo saying it was just acne and to “stop scratching and picking”. I was on Doxycycline but didn’t stop the nodules from firming. I was on 3 rounds (2 pills a day x 30 days). Given every steroid cream and a round of oral steroid. Finally I decided to go on Dupixient. It’s been a month so I do t know if it is helping. I had nodules on both knees and ankles too. Across the chest, but not on breasts. Now I think it’s definitely on my face. I am so glad I am wearing a mask for Covid and upper respiratory viruses so I can cover the PN on My chin and cheeks. Fortunately, I don’t have bad itching. That’s why I think PN wasn’t diagnosed earlier in the 3 years since I’ve had nodules. There is some pain, but not enough to take anything more than Advil.

Good luck to all and keep in touch on Your progress!
💕

February 25, 2023
A MyPrurigoTeam Member

I have had them on my breasts for years. Someti.es they look like bedsores. I feel my skin itch and
I will feel something like a a little bebe from a bebe gun. Within 25hrs it comes through the skin and itches like crazy. Iy opens more and more like a bedsore. I have had some that took several years to go away only to have another one.pop up.

February 8, 2023
A MyPrurigoTeam Member

Now this was very informative.
Will they give me a marijuana card I think I need it

January 8, 2023
A MyPrurigoTeam Member

Yes! Serous fluid, white substance and a lot of blood.

May 4, 2023

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