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I've had a crappy immune system (Hypogammaglobulinemia) my whole life, but not crappy enough for most doctors to take seriously. I have found some anecdotal evidence on-line that some people who have gotten Intravenous Immunoglobulin (IVig) may have cured their had their PN. (IVig basically gives you back healthy immunoglobulin antibodies, which boost and support your immune system.) Of course, the fickle internet won't let me find those references again... I'm curious if anyone has had IVig or… read more
Hi Sati, & welcome! I started on the Methotrexate about 5 weeks ago, & have noticed it somewhat helps. Never thought of an Immunologist, but after 8 Dermas & 1 Allergist, & now will be treated by my family doc! Hope you can find some much needed relief for your PN!
I did not suggest anything that would or would not work for others. I was sharing a personal experience.
I've been seen by so many. And the head of our area Allergy & Immunology. PN had him stumped
Sorry it was taken out of context!!
Methotrexate is one that terrified me. I did not take it, it’s used as chemotherapy and my neighbor was taking it for PN and lost all her hair. I did hear of 1 nurse who traced her PN onset to MSR , “hospital flu”. She did immunotherapy and has good results. I have been taking Dupexint for 2 months and I can not believe the relief I have from it. Lesions gone, and itch about 99% gone. 20 years of PN hell gone with the first injection.
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