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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyPrurigoTeam Member asked a question 💭
Tooele, UT

I know this sounds cray, cray or comparable to the song, "Light My Fire"......but in 2018 after dealing w/this unknown rare disease I asked my PCP about going on Dupixent, & he basically said no! I wondered why thinking this was possibly my much-needed relief! He originally diagnosed me with Neurodermatitis which after all the Dermas I had been to with their guesses, this disease was the closest to what I was experiencing. Again, doing much research I had read where Capsaicin helps along the… read more

May 11, 2024
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Answer Summary

Members discussed the potential use of capsaicin for scalp prurigo nodularis, with the original poster expressing desperation to try it... Read more

Members discussed the potential use of capsaicin for scalp prurigo nodularis, with the original poster expressing desperation to try it despite concerns about the burning sensation of hot chili peppers on their scalp, ultimately deciding to stick with other moisturizers instead. Several members shared their excitement and knowledge about nemolizumab, a promising new drug currently in FDA review with Priority Review status for PN, though it's not expected to be available until 2026 and should not be confused with Nucala. A recurring theme was the frustration of limited treatment options, with one member recommending switching doctors if a dermatologist refuses to prescribe Dupixent, though another shared that Dupixent didn't work for them after 16 weeks of trying.

A MyPrurigoTeam Member

If you truly have PN, and your doc will not put you on Dupixent, find another dermatologist!

May 21, 2024
A MyPrurigoTeam Member

The U.S. Food and Drug Administration (FDA) has accepted Galderma's Biologics License Applications for nemolizumab for the treatment of patients with prurigo nodularis and for adolescents and adults with moderate to severe atopic dermatitis. Nemolizumab was granted U.S. FDA Priority Review for prurigo nodularis.

May 12, 2024
A MyPrurigoTeam Member

Only thing that has helped the scalp is a good massage with teatree oil. I am see my doctor soon about the new drug. We will see!

May 11, 2024
A MyPrurigoTeam Member

I seen an Allergist & asked to be put on it! I was on it 16 weeks, & nuttin' honey! UGH

May 21, 2024 (edited)
A MyPrurigoTeam Member

Kristi & you are right on the Nemolizumab as it is available in Japan so do you wanna get the heck out of Dodge and go to Japan for hopefully some much-needed relief?!?!🏯🎎🤣

May 12, 2024

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