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I have exhausted all avenues to find out when the FDA is going to approve the new drug Nemolizumab to the thousands of us suffering from this horrific disease as I have been dealing w/this on my scalp for 15 years. I looked up their website & found their email & have decided I am going to contact them whether they will reply or not, before I go totally insane as it has totally affected my quality of life! I am a fossil & would like to somewhat enjoy the last chapter of my life with some… read more
Hi Christine8, BTW I couldn't find that You Tube you suggested, but I will keep looking! Keep chilling!❤️
Can you explain the different stages please. I'm still constantly wanting to learn more about this mystery POS curse we all have to deal with+!
It shows markers when they do a biopsy of a lesion. Though I have read different things that different Drs do and don't actually read in them. So, my understanding is it is not a strict yes or no… read more
Yesterday I sprayed an instant root cover up, from the drug store, on my grey roots. It has totally killed my scalp. I am back to a pre-dupixent, pre anything condition. The nodules doubled and it is so painful I cannot touch my hair, let alone my scalp. Two days ago it was better than it had ever been. I am just writing this because I had no idea this could happen to such an extreme. I am weary today with the struggle.
Is this common to have sores in your mouth? I have had recurring mouth zits (what else would you call them?!) in the past inside my cheeks, but lately I'm really struggling with what I thought were… read more
I have been on .5mg Xanax for years. My family doctor pulled the rug, why? I am 81! I broke out, itched everywhere. Stress! I have a new doctor, thank goodness!
Good for you Georgia as I have been on 5mg Xanax twice a day & have been on it 4-Ever! I am a 75 yr old fossil, & if it wasn't for this, I would be total bonkers as it does give me some relief from… read more
Itchy lol
This is the oil I have been using on half of my body.
Some parts of the day are usually better than others. But, in a year since this started, I don't think there has been a day where my mom hasn't woken up itchy.
Kat2-I do have some none itchy days. I use ice packs to stop the itching. But every now and then I have a non itchy day and declare myself making progress but it is all a fantasy. lol!!
If you have never tried a bleach bath I would consider it. Truly it is no worse than a public swimming pool smellwise. It only calls for 1/2 cup for a full tub but do not use with epson salts or other… read more
You're most welcome
Mediterranean diet is kind of what I do, but I have weeks where it's red meat, others that's no meat. The main thing for me in that, is to once again keep it simple. If there… read more
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