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We keep hoping... I've not read or heard of anyone's going away. In between flares, might be long stretches, and no bonafide fix all for everyone, yet. Some get relief, but it's not a cure, sorry to… read more
I have been diagnosed for several years and just recently had another pn on one of my eyelids! I have one in a fold of one ear and probably like most of you, have had private areas infected, too. I find it weird how both my arms are affected, along with my scalp and neck, but the pns are only on one hand (over and over again) and one leg! Interestingly enough, the leg that is infected is NOT the leg I had my knee surgery on, but they also didn't put any appliances in at the time or replace… read more
Linda6-i hope you will keep us posted on the injected nodules and how that does long term.💜
Yes I've had itchiness on my legs. They have cleared up alot. Scars remain.
John
Did you have to come to the US to get you're prescription
I remember-I think it was you- who was flying back to the US for a prescription
I hope it works whatever they prescribe
It seems like a… read more
Love the colors in it!
Diagnosed with chronic nodular prurigo (CNPG) in March 2024. Combination of Tacrolimus and Pregabalin have helped control the worst of the night time itching and sleep deprivation. My biggest problem currently is excruciatingly painful flare ups in patches - look like eczema but do not itch. Very sensitive to heat and not responsive to corticosteroids or immunotherapy creams.
Hope and rest....
I've got one coming in today.
That would be nice.....but at this point, I'd be okay with AT LEAST a reason that it might be the reason for extreme exhaustion or just wanting to sleep for hours :(
Reason for stopping was new shift at work with time not permitting me waiting after the shots
Truth!! Ty
Taking Benadryl at night helps with the nighttime itchies for me. Doesn't do much for the daytime though.
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