I think it has had a lot to do with stress.

Good luck with your appointments.

I was on Doxycycline and Cefadroxil for 15 months before the PN diagnosis because biopsy showed Staph infection. I don't think it helped at all. I didn't try Erythromycin, but antibiotics are probably not the answer, and they can have bad side effects!

I would ask your Derm about Dupixent. I've been on it 9 months and it has reduced the itchiness and dramatically decreased the number of new sores. I do feel that it being on the scalp complicates the healing. In my experience the hair falls out of each PN spot and when new hair starts to grow back in it causes more scabbing and crusting trying to push up through that hard, damaged skin, which will finally heal when a majority of the hairs grow all the way in. This is a long healing process and quite frustrating. Also, not touching really does help. I am not certain touching/scratching actually causes new sores, like my Derm says, but it sure does slow healing and makes the itching worse.

If the Dupixent is too expensive the pharmaceutical company has a coupon (if you are on private insurance) and a Patient Assistance Program, which is how I get it because I am on Medicare.

All my best!

I well understand how people feel, dang straight, but I would rather ere on the positive hopeful side. That's why I signed up for this. Not to become depressed. 🥺

I would not be surprised if stress caused this over active nerve reaction. Mine has been building up for years.

I think stress 100% is behind flareups.