I have been sick for 2 years besides the rash. Blurry vision, swelling, swollen glands. Dermatologist says not a result of pn. Now I am down to being tested for lupus if I can get to the hospital. So tired! Back to regular doctor!
Answer Summary
Members connected over the original poster's frustration about experiencing systemic symptoms beyond their skin rash, including joint pain,... Read more
Most Docs and Derms are clueless , they are all blind men describing parts of the elephant, people with it helping people with it has been the best salvo for me with tips to manage it, its for life.
I swell a lot stomach and face, I have a lymphoma on my upper arm this is second it’s very big and painful, I have a tear in my knees with leaking fluid. I’ve had PN since I was born had the strangest of illnesses. It is an autoimmune condition so at this stage we can literally get anything our body wired differently to other people. I find if one thing stops it’s replaced with something else so body always run down and struggling. I wish you well
Rheumatoid arthritis and osteoarthritis cause joint pain, swelling and hot to the touch joints. I have both, unfortunately. I don’t know anything about lupus, sorry.
More questions. Is the lupus causing the rash? Does the doctor know? I am being tested tomorrow for lupus because of the moving pains. My dermatologist says the pn doesn't cause joint pain but I don't think they know. Your experience?
Good grief! Butterfly rash is lupus. I am on hydroxychloroquine, we will see. Is the nerve problem due to the rash? God bless you!