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A MyPrurigoTeam Member asked a question 💭
Kalkaska, MI
February 3, 2024
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Answer Summary

Members shared frustrating stories of being misdiagnosed for years, with many told their painful nodules were hives, self-inflicted wounds, or... Read more

Members shared frustrating stories of being misdiagnosed for years, with many told their painful nodules were hives, self-inflicted wounds, or even signs of drug use before finally receiving a proper prurigo nodularis diagnosis through a biopsy. Several members described the exhausting journey of seeing multiple dermatologists and waiting for biopsy results that often came back as nonspecific or incorrect, with one member fighting for four years before finding a doctor who understood their condition. A recurring theme was the relief and validation that finally came with an accurate diagnosis, even as many continue to battle insurance denials for treatments like Dupixent.

A MyPrurigoTeam Member

My GP took one look and said "nothing else itches like that or looks like that".

February 4, 2024
A MyPrurigoTeam Member

I had several punch biopsies over the years. The first wave of biopsy results shows SK as the culprit, then recently they showed as lichen simplex chronicus (LSC). After visiting dozens of dermatologists in multiple states since 2018, I went to an MD who had experience with radiation therapy (SRT). I was so desperate for relief that I was willing to pay out of pocket for rounds of radiation. The MD took one look at my nodules and immediately diagnosed me with PN and prescribed Dupixient in December of 2023.

February 22, 2024
A MyPrurigoTeam Member

Biopsy & regular visits to the Dermatologist.

February 22, 2024
A MyPrurigoTeam Member

My mom, who has this, had a biopsy that showed PN.

February 21, 2024
A MyPrurigoTeam Member

After a years of being told hives and that I was doing it to myself , like I literally made perfect circles on areas I can’t even reach ugh one guy comes walking in the room before even meeting me, saying I know what it is and then spoke to my boyfriend didn’t even address me the entire time ugh ! But finally a couple of months ago a dermatologist did a biopsy to and gave me an answer .

February 3, 2024

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