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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Where is the weirdest spot you've had pns?

A MyPrurigoTeam Member asked a question 💭
Denver, CO

I have been diagnosed for several years and just recently had another pn on one of my eyelids! I have one in a fold of one ear and probably like most of you, have had private areas infected, too. I find it weird how both my arms are affected, along with my scalp and neck, but the pns are only on one hand (over and over again) and one leg! Interestingly enough, the leg that is infected is NOT the leg I had my knee surgery on, but they also didn't put any appliances in at the time or replace… read more

May 3, 2024
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Answer Summary

Members shared the surprisingly varied and sometimes unexpected locations where prurigo nodularis has appeared on their bodies, including... Read more

Members shared the surprisingly varied and sometimes unexpected locations where prurigo nodularis has appeared on their bodies, including scalps, ears, eyelids, faces, arms, legs, and even inside the nose, with many noting the asymmetrical pattern of nodules affecting one side more than the other. Several members described treatment approaches that have brought relief, including steroid injections that provided faster healing and pain-free showers for the first time in a year, Methotrexate that greatly reduced breakouts, and dietary changes like going gluten-free combined with vitamins for nerve pain. A recurring theme was the emotional toll of visible nodules, the challenge of finding knowledgeable doctors, and the discovery that stress, certain medications, and even allergic reactions to surgical implants like titanium knee replacements can trigger or worsen the condition.

A MyPrurigoTeam Member

I have nodules on legs right at back. Just saw new Dermatologist who was excellent!! Froze those on left side of body, injected steroids right side to see which worked best, it’s definitely injected area healing faster & have been pain free since appointment, even took painless shower for first time in at least a year. Think I’ve found the best so far, he was amazing, thoughtful, knowledgeable 🙏🙏❤️❤️

May 3, 2024
A MyPrurigoTeam Member

Linda6-i hope you will keep us posted on the injected nodules and how that does long term.💜

May 7, 2024
A MyPrurigoTeam Member

I got my arms and back. I got to say that by taking Methotrexate it is greatly improved and no new breakouts. Hope you all remain well.

May 6, 2024
A MyPrurigoTeam Member

Last dermatologist visit I’m to increase Dupexent to weekly

May 5, 2024
A MyPrurigoTeam Member

Hi Kristi
I've luckily never had the nodules on my private parts -- yet!!
But everywhere else yes!
Just started to get them on my scalp but they are not itchy yet thank goodness- only time will tell I guess
It is a very rare weird scarey itchy painful disease for sure
Even my family doctor had no idea what it was
The dermatologist did a biopsy and finally diagnosed it
They should be teaching this in medical school but I guess GP'S cant know everything they rely on the specialists
Knee surgery is also very painful and serious 💜 I guess it could also depend on what medications you are taking and definitely stress makes it worse for sure🤯
Take care and hang in there
Have a nice weekend

May 3, 2024

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