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December 9, 2024
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Answer Summary

Members discussed the difficult decision of whether to get vaccinated when living with prurigo nodularis, particularly when starting... Read more

Members discussed the difficult decision of whether to get vaccinated when living with prurigo nodularis, particularly when starting immunosuppressive treatments like JAK inhibitors. Several members shared personal theories about potential triggers for PN, including stress, viral infections, and possibly COVID vaccines, though many acknowledged that PN existed long before COVID and that the true causes remain largely unknown. A recurring theme was the tension between protecting oneself from serious infections like varicella zoster and the fear that activating the immune system through vaccination could worsen PN symptoms, with members ultimately recognizing that each person must weigh these risks carefully with their medical team.

A MyPrurigoTeam Member

Georgiafowles
Good 2 hear from U again Hope U R doing ok & a bit better than previously with your health journey
Yes no one really knows or understands this rare disease
Possibly the COVID vaccine triggered PN 2 develop in some people but others on this support group have suffered from it 4 many years B4 COVID so who really knows,??
It's really a mystery disease for sure & misdiagnosed, & misunderstood by even the specialists who some of them say- it's all in our heads
Can they NOT C THE INFLAMED SCABBY NODULES?? Sorry 4 my skepticism but Really??
I have been immune- compromised since 1995 when I out of the blue developed Psoriasis immediately after my dad passed away so I believe whole heartedly that st severe ress triggers some of us 2 develop these abhoyskin diseases in response Just my personal opinion from personal experience
I developed PN out of the blue early this year after a few very stressful life events so who knows what the cause or triggers R Different 4 everyone obviously
Take care
Bye 4 now 🤗😍

December 9, 2024
A MyPrurigoTeam Member

I wish I had an answer. It seems like since covid the number of people with pn has increased. But maybe we are just more aware. There is so much we don't know about viruses. I have a cousin, doctor, who has said no covid boosters. I also had a nurse who was adamant about no covid boosters after what she has seen. But we have to decide for ourselves and pray!

December 9, 2024
A MyPrurigoTeam Member

Probably depends on the meds you're on. I'm on Dupixent and told not to take live vaccines.

December 12, 2024
A MyPrurigoTeam Member

Tina I agree with you.

December 22, 2024
A MyPrurigoTeam Member

Nancy, I didn´t mean that I´m against vaccination, on the contrary, but when it comes to diseases where your immune system is involved, such as probably PN and autoimmune diseases a vaccination in theory can aggravate your autoimmune disease by triggering your immune system. I felt unsure what to do now having severe PN already.

December 13, 2024

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