I'm so sorry to read this. The Clobetesol may not be successful for everyone. My dermatologist recommended Triamincilone 0.1% first which was unsuccessful for me. The dermatologist explained to me that treatment for PN varies for patients and that it's similar to unlocking a door. Interventions are not one size fits all. For me, it was multiple medications including Dupixent tried and discontinued. I live about 2.5 to 3 hours from them as I moved but I am reluctant to find a dermatologist in my area.

Cathy 924
Thankyou for the sunscreen info! It takes so long to see a dermatologist here! I do mostly my own research now as I've had no help really. I used taro clobbetasol from my regular doctor and it did absolutely nothing but made it some worse. Perhaps it is the alcohol in it.. like one of our fellow sufferers mentioned it being troublesome

Thankyou Mary from Canada! I don't gave a regular dermatologist and it took me several years to see the one I did. She had nothing to say really..Just treat your scalp! So I went to another one and he gave ma scalp cortisone shots which made it worse;(I don't have much faith in them as a result so am going to a naturopath presently.
Maybe you will make it one day to Denman Island. We are heading to Vancouver Island to camp this summer and possibly one or two of the smaller islands.
Take care too!

Elle in Kelowna🤗🍁
Hello I'm MaryLou in Toronto
Nice 2 C a fellow Canadian in the group as there arent very many of us lol
I agree with Cathy924 that your dermatologist would have the best advice on this issue
I've had psoriasis 4 over 30 years & the sun💥definately helps my psoriasis & my doctors over the years agreed
I only got diagnosed with PN last spring 2024 & the sun does seem 2 help with PN as well thank goodness, but again that's just my personal experience so check with your dermatologist as we R sll different obviously & respond 2 the same medication differently etc😊
My friend lives on Denman Island Its so beautiful out West, but I've had claustrophobia since I was 15 so I've never been able 2 visit her However the pictures she sends me R lovely.
Take care
Bye 4 now

My dermatologist recommended Blue Lizard sunscreen for sun protection. It's lightweight and she felt it wouldn't aggravate my skin. I have found that sweating has been a contributing factor in my scalp lesions. I don't know if it is advisable to go out in the sun with sensitive skin. What does your dermatologist suggest?