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July 8, 2025
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Answer Summary

Members connected over the question of whether to test for parasites before starting Dupixent, with most saying they were never asked or... Read more

Members connected over the question of whether to test for parasites before starting Dupixent, with most saying they were never asked or tested, though one received preventive Ivermectin treatment. Several members shared frustrations about diagnostic uncertainty, including multiple inconclusive biopsies, stubborn symptoms despite topical treatments, and the emotional toll of living with visible sores and relentless itching that leaves them feeling isolated and misunderstood. A recurring theme was the mental health struggle of managing a condition that makes many feel like something is crawling on or inside their skin, compounded by heat and humidity worsening symptoms and the loneliness of others not understanding what they're going through.

A MyPrurigoTeam Member

Heat and humidity seem to be the trigger for me.

September 1, 2025 (edited)
A MyPrurigoTeam Member

I have never been asked about the parasites. I will ask my dermatologist when I see him in a couple weeks. I'm seeing a new dermatologist so maybe this one will know more than the other one.

July 12, 2025
A MyPrurigoTeam Member

I had several biopsies that came back non-specific before two came back PN. Dupixent has definitely helped mine clear up and I had hundreds on my back, arms and legs. Right now I have 3 stubborn ones on my legs and one on my face. I use CereVe anti-itch moisturizer to control the itch and doing well. Don't despair, you will find something that works for you. It takes awhile. I've been on Dupixent for almost a year now. Oh yes, still have scalp issues and use Clobetasol, prescribed by my doctor. No issues, unless I forget to use twice a day. Hang in there!

July 11, 2025
A MyPrurigoTeam Member

It says on the dupixent information you should talk to your doctor about any parasites before starting the medication. I haven't seen anything in the group.

July 9, 2025
A MyPrurigoTeam Member

Georgiafowles
Hello🤗
I believe as far as I aware, the best/ only way 2 definitively diagnose PN is with a biopsy
I was very lucky last year when a dermatologist did a biopsy & within 2 weeks had a diagnosis from the pathologist
Also wondering about being tested 4 fungus/ parasites? I've never heard that mention in this group? I wonder if they've discovered something new that those issues R related 2 the cause of PN? Very interesting 4 sure I always question how we get PN in the first place, as no doctors seem to know😯
If anyone else in the group is aware of this issue it would be very much appreciated if U could share any information & enlighten us
Do they test with a blood sample??
I will ask my doctor next time I C him & also look it up online
Take care😍

July 9, 2025

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