and a half years with pn, you exhausted all options, found out what works a bit for you and stay with it. Until there's a cure, what choice?
Answer Summary
Members rallied around someone navigating the exhausting reality of living with prurigo nodularis at 82, offering fierce validation that... Read more
I am fine with suggestions. I just need to keep you more informed on what I'm doing. Ready, I guess, for my first dupixent. I can't believe I missed that on the iron tablets. The label says ferrous sulfate! I am finding I have really messed up some things this past months. I'm sorry about your family. I'm going for more counseling about mine what is left because I have found I haven't dealt with the anger and fear. Best to you!
I am going one step at a time with my dermatologist. We will see what dupixent does. Next step, nemluvio. Topical? So far not much but mucipron(sp) and Vaseline helps a lot to soften sores Please don't take my name. I just don't elaborate alot and this is a support group.
Faith, thank you for suggesting that very approach. I feel very bad that Georgia has been receiving that treatment. I think it is a great idea to take someone along to hear what the physician has to say and what their recommendations are.
Hi Georgia - it definitely wasn’t me that said you were in a rut! Recheck - I would never say that as it’s a useless/unhelpful comment.
Georgia, I don't need to be kept informed about anything. I have enough to deal with on my own. It's totally up to you what you share or don't share. I just don't want words put out as mine when I didn't say them in the first place. It's best to do what works for you and gives you peace.