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A MyPrurigoTeam Member asked a question đź’­

Hi everyone 🤍 I could really use some insight.

I was diagnosed with prurigo nodularis (PN) twice in the past, mainly because of the post-inflammatory marks on my legs. But recently I had another flare-up and consulted an online doctor. He told me my current rash doesn’t look like PN and prescribed antibiotics and anti-itch medication. He also suggested I take an allergy test (total IgE), but I haven’t done it yet.

What’s been confusing me is that most of my flare-ups don’t actually look like… read more

February 24
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Answer Summary

Members responded to someone questioning their prurigo nodularis diagnosis after experiencing small blisters instead of typical hard nodules,... Read more

Members responded to someone questioning their prurigo nodularis diagnosis after experiencing small blisters instead of typical hard nodules, with several confirming that their own PN started as tiny blister-like pimples that itched intensely rather than the textbook presentation. Many community members described the importance of seeing an in-person dermatologist who specializes in PN and requesting a punch biopsy for definitive diagnosis, with some sharing they had to visit multiple doctors before getting accurate answers. A recurring theme was that PN can look very different from person to person, ranging from small red bumps to large welts or burn-like marks, and members encouraged persistence in finding knowledgeable specialists while managing symptoms with OTC products and supplements like NAC in the meantime.

A MyPrurigoTeam Member

If it were me, I would find an in person dermatologist who has expertise and experience in treating PN. I also think that once you choose a dermatologist, a punch biopsy should be performed to obtain a diagnosis and a subsequent treatment plan. Dermatologist recommended, or formulated OTC products may help you until you have an appointment. I use Lubriderm Advanced Therapy (red label) , CeraVe products for my face, and a sensitive skin shower liquid shower soap. If you have scalp issues which I do, I would suggest Head and Shoulders Bare shampoo. Try your best not to scratch or pick your skin. If you are itchy, my dermatologist recommended N-Acetyl-Cysteine (NAC 600 mg twice per day). NAC is a supplement to treat the lesions and reduce the itching. It can be ordered through Amazon. I purchased Nutracost brand because it is vegan. I hope that you find the answers you need to promote healing.

February 25
A MyPrurigoTeam Member

Mine started out with little red blister like pimples and itch like crazy and the more I scratch the more it itched and made big holes in my skin. I was finally diagnosed with PN from a dermatologist. Good luck to you and welcome to the group. This is a good supportive group

March 25
A MyPrurigoTeam Member

Doctors don't have a clue they think PN is scabies and have given me scabies meds.finally I went to a dermatologist he diagnosed me with PN I did not want to believe I have PN so I went to other dermatologist and they agreed with my first diagnoses so I finally embraced the fact I have PN

March 24
A MyPrurigoTeam Member

My word ladies. You’re suffering from situations that are new to me. My main questions are: Are you seeing your doctors regularly, are you on preventive medicine and do you think that you should get a second opinion????
It’s perhaps all part of this horrible disease, but to ease your minds, it wouldn’t hurt to see another specialist for peace of mind.
My heart goes out to you. We’re all suffering differently but it seems as though our choices of meds are increasing.
God bless you!

March 20
A MyPrurigoTeam Member

TBH, my only advice would be to find a new dermatologist and demand thorough testing to get an exact diagnosis. Demand to know what the problem is. Then figure out the right approach to fixing it.
In the meantime, I would stick to safe, known OTC products to deal with things as best you can.

February 24

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