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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How can I get vaccines? My doctor said they will not let me have vaccines unless I've tried every cream out there. Well I probably have try

A MyPrurigoTeam Member asked a question 💭
St. Petersburg, FL

So what do I have to do beside going and getting diffent creams that cost me a small fortune. I am so depress and I really do feel sorry for myself. I would not wish this on mt worst enemy

May 19
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9 Prurigo Nodularis Treatment Options Read Article...
A MyPrurigoTeam Member

Hi Else! I don't think that you need or should try every topical medication available. I would inform the dermatologist that you will start with the common topicals used to treat PN: Clobetesol 0.05%, Triamcinolone 0.1%. Actually, if you have the insurance coverage, I would inform them that you prefer to try Dupixent and if that doesn't work, try Nemluvio. I don't think the dermatologist is accurate about the vaccines with PN either. I have had vaccines with no negative effects on PN. Actually, I would seek a second opinion and if that dermatologist is more knowledgeable and grounded, I would transfer my care to them immediately.

May 20
MyPrurigoTeam

First, it's completely understandable to feel overwhelmed and exhausted — prurigo nodularis is genuinely tough, and nobody should have to fight this hard just to access care. You are not alone in feeling this way, and your frustration is 100% valid.

It sounds like there may be some confusion about what your doctor means by Show Full Answer

First, it's completely understandable to feel overwhelmed and exhausted — prurigo nodularis is genuinely tough, and nobody should have to fight this hard just to access care. You are not alone in feeling this way, and your frustration is 100% valid.

It sounds like there may be some confusion about what your doctor means by "trying every cream." Topical treatments are typically a starting point, but they are not the only path forward. Here are some steps that may help:

- Document everything — Keep a record of every topical treatment you've tried, how long you used it, and why it didn't work. This builds a strong case for moving to the next step.
- Ask specifically — Ask your doctor to clearly define what criteria need to be met before they'll consider other options, including vaccines or biologics like dupilumab (Dupixent).
- Seek a second opinion — Some dermatologists are more experienced with prurigo nodularis than others. A specialist may have a very different approach.
- Ask about patient assistance programs — Many medications have programs to help with costs. Ask your doctor or pharmacist. You absolutely deserve effective treatment, and advocating for yourself — even when it's exhausting — can make a real difference. You've already shown incredible strength just by pushing forward.

May 19
A MyPrurigoTeam Member

Dupixent is FDA approved as a first-line treatment for PN. Tell your doctor he is full of beans and to put you on Dupixent yesterday. Else, find a new doctor ASAP. Sorry to sound harsh but you need to know your rights and to stand up for yourself.

May 19

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Has Nemolizumab (Nemluvio) helped anyone?

A MyPrurigoTeam Member asked a question 💭
Louisville, KY
October 29, 2024

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