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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 18, 2023
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Answer Summary

Members with prurigo nodularis on their scalps shared experiences of headaches, intense itching, and sensations of crawling under the skin,... Read more

Members with prurigo nodularis on their scalps shared experiences of headaches, intense itching, and sensations of crawling under the skin, with several noting that neurologists and dermatologists often admit they don't have clear answers for this rare and understudied condition. Several members discussed treatments they've tried, including tea tree oil for temporary relief, Aimovig for migraines, and Methotrexate (originally used for rheumatoid arthritis) as a possible option when other therapies fail, while also sharing hope about emerging treatments like Nemolizumab currently in clinical trials. A recurring theme was the frustration of feeling dismissed by doctors, being treated like guinea pigs with trial-and-error medications, and the emotional toll of living with a disease that severely impacts quality of life yet receives little research attention or understanding.

A MyPrurigoTeam Member

My dermatologist is very honest. We don't know! I can accept that to a point but what is being done?

September 23, 2023
A MyPrurigoTeam Member

Sadly I don't think there is any answer. So many weird things. I don't leave the teatree on ,just sprinkle and rinse. Only 1 percent of people get this. I fear we are not a priority for research. Just keep sharing, it's a help.

September 23, 2023
A MyPrurigoTeam Member

I use teatree oil, helps a bit!

September 22, 2023
A MyPrurigoTeam Member

Sounds rather painful.. I know this PN in my arms and legs feel at times ants are crawling under my skin but i read its connected to the nervous system.......but the head, is something you'd need to ask your Dr. I know psoriasis and eczema can be on the scalp but was not aware PN is. I had read PN is most times on legs arms, back and stomach......but you should know, and it makes perfect sense why many of us have an uncontrollable itchy scalps at times......(now it added on my list to google) After all, skin is the organ attacked with PN and our skull is covered with skin ......but with headaches, may I suggest you run that by your Dr........many things can cause headaches, from simple to complex.....call for an appt...not having the same symptom, I don't feel I can answer, would not want to misinform you.

September 21, 2023 (edited)
A MyPrurigoTeam Member

My thoughts exactly!!👍

September 25, 2023

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