I am having trouble coping with this new life with PN. I can’t swim anymore, I cancel plans all the time due to insecurity of PN, can’t be outside long. I just don’t see this improving at all in my future and feel so lost. How is everyone coping with PN? I’ve tried getting indoor hobbies but I miss my “old life”
Answer Summary
Members opened up about the profound isolation and emotional toll of living with prurigo nodularis, sharing how visible lesions and scars have... Read more
I hear ya! I went to a doctor for an upper respiratory infection and I didn't know I had PN at the time with these itchy nodules all over my arms. The Dr. Accused me of being a drug addict. It happened 2 x. I told them take a blood test if you don't believe me. The one Dr. Yelled it loud all office heard him. I was calm and asked for the antibiotics and I also reported him. I am not going to let these doctors humiliate me just bc they have a degree. Or think they're higher than me. Only God sits that high. This disease is hard to deal with. I just do it one day at a time!!
Quality of life, frustration, depression, anxiety, crazy, hopelessness, & list goes on and on!😱
Well said Tina!🖐🏼
No matter what, I go out, or I would be so depressed. You only get one life folks and it's going way to fast for me. You can't go back, so keep going forward. Whether you know it or not, your fellow humans are all going thru something.
So stop licking your wounds(pun) and get out!
I have scars where no lesions came out but that circular star scar. You can tan it. Shorts are all I wear ND people will ask what is those scars from. My last out breK on my back lasted yeR and a half before healed. No swimming your right. Were all here for you