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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do any of you have trouble with your eyes?

A MyPrurigoTeam Member asked a question 💭
Berea, OH

My first bad pn outbreak I started seeing double. It has never gone completely away to the point I had to stop driving. Of course I have been the gamut of doctors, one more for a 2nd opinion and I quit!

November 19, 2023
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Answer Summary

Members discussing double vision and eye trouble with prurigo nodularis shared a range of experiences including dry eyes severe enough to... Read more

Members discussing double vision and eye trouble with prurigo nodularis shared a range of experiences including dry eyes severe enough to prevent opening eyes in the morning, blurred or double vision that made driving and walking difficult, and vision changes linked to related conditions like Sjögren's syndrome or medications like Dupixent. Several members described practical challenges such as needing eye drops immediately upon waking, difficulty reading small print even after cataract surgery, and the frustration of distinguishing between symptoms caused by PN versus overlapping autoimmune conditions. A recurring theme was the emotional toll of managing yet another symptom on top of an already overwhelming illness, with many expressing doctor fatigue and uncertainty about whether their eye issues stem directly from PN or related autoimmune attacks.

A MyPrurigoTeam Member

I wonder if these cells attack the eye too. Have to go to the eye doctor but I am so sick of doctors! Thanks!

November 20, 2023
A MyPrurigoTeam Member

yes. at the start I did. That's when they related my PN to a result of SJOGRENS Autoimmune.

November 19, 2023
A MyPrurigoTeam Member

It seems like when I got the but you're ash or whatever my eyes did go bad. And it seems like they're getting worse. it's like once that started everything else. Kind of fell apart too not everything but important things

November 27, 2023
A MyPrurigoTeam Member

Thank you. When I was first diagnosed with pn, my eyes started giving me trouble. I see double sometimes and walking is impossible. Scary to go out! Doctor says dry eyes and I hope they can do something. My hair has gotten very dry too and is falling out. What an illness! Bless you!

November 26, 2023
A MyPrurigoTeam Member

My eyes are really bad i have dry eyes i wake in morning and have to reach for eye drops and if indont have anybI have to wait for 5 to 10 minutes for my eyes to be able to open seels like something is sticking in them and i can't open them and i have had cataracts removed and stents putin and i still cannot read a medicine bottle or anything with small print like a newspaper or Bible

November 26, 2023

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