Yes, I try not to let it upset me but when I start to itch, I am stressed. Then everything becomes so hard and I am exhausted. I don't think I deep sleep either. Quality of living is not great.

I spend hours obsessing over my skin and the pain and itch. I dont want to go into public anymore

Tina- Thank you for responding! I’m so glad I found this group!! I have dealt with this for many years now, and finally got diagnosed a couple years ago. It’s nice to know that I’m not the only one that experiences these symptoms. It’s been tough dealing with it, especially around my family. They think that I’m on some serious drugs, and that’s why my skin looks like it does and I’m constantly fidgeting/itching. I have also given up on working as a RN, due to the fear of getting something even worse and also because of the looks I get from others when they see my hands/arms. I feel like PN has completely taken control of my life, and I want to get it back! I was prescribed Dupixent about a year ago, but my insurance denied it. They said that there was 1 oral med that I hadn’t tried yet, and I had to do so before going to injections. This was a med for people who have organ transplants and it helps prevent organ rejection (can’t remember the name off the top of my head??) I felt like the side effects of that med, seemed even worse than the PN. Any suggestions on how to take control of this, is greatly appreciated!!