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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyPrurigoTeam Member asked a question 💭
Palm City, FL

I had my first, bad breakout about 18 months ago. After a few months, I healed, leaving scars, of course. I thought I was extremely lucky and it was gone. UNTIL I started with new breakouts this month. I'm wondering if something might trigger an outbreak, but can't figure it out. Anyone else??

August 6, 2024
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Answer Summary

Members shared their experiences with prurigo nodularis (PN) waxing and waning over time, with triggers ranging from insect bites and stress... Read more

Members shared their experiences with prurigo nodularis (PN) waxing and waning over time, with triggers ranging from insect bites and stress to weather, foods, and certain products. Several members emphasized that the hardest but most effective approach is resisting the urge to scratch or manipulate the nodules, as doing so can cause spreading and potential hair loss, with suggestions including topical medications like Derma Smooth, antihistamines like Benadryl, clove powder as a nerve blocker, and gentle moisturizers. A recurring theme was the profound frustration of living with a rare, incurable condition that offers no one-size-fits-all treatment, leaving many feeling desperate for relief and deeply grateful for any shared wisdom from others who understand the daily struggle.

A MyPrurigoTeam Member

Hi Jan! My experience with PN is that it does wax and wane. Mine has been triggered by an insect bite that developed into PN occuring with the insect bite. My primary care physician first identified a coexisting skin condition which upon biopsy was determined to be PN. I found out that the best but hardest approach is to leave the nodules alone except for topical medications if needed and then daily moisturizers. Scratching them or manipulating them in any way made them worse. Triggers could be heat, stress, bug bites, foods, anything could be someone's trigger.

August 6, 2024
A MyPrurigoTeam Member

Hi Carla! I don't know if you have tried any of the medications I use for my scalp. I've used a variety of topical that didn't work. Right now, I'm using Derma Smooth and Head and Shoulders Bare. PN on the scalp is very frustrating because I can't see the nodules; I can only feel them. If I feel itchy, I take 50 mg of Benadryl. The dermatologist told me the scratching them and manipulating them will cause them to spread so I leave them alone. She also said scratching and manipulating them could possibly lead to damage to the hair follicle and hair loss so that scares me. It really is frustrating especially since there's not a one treatment that works for everyone.

August 7, 2024
A MyPrurigoTeam Member

If you use clove powder as a nerve blocker, you can remove the skin at the base, and the nodule won't be able to protect itself, and act like a cut, and dissappear.
Use a liquid bandage, and put a pinch of clove powder on top.

August 7, 2024
A MyPrurigoTeam Member

Weather,Foods,Stress and products.

August 7, 2024
A MyPrurigoTeam Member

I went for several months without a bad breakout, then wham. I have been on Xanax for years but my family doctor decided he didn't want to deal with it anymore. Panic and break out. You can only have. 5mg now, when I was on 2mg I was fine. I know it's addictive so they have to be careful. I changed doctors, am going to a psychiatrist this week.

August 11, 2024

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