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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Nemolizumab (Nemluvio) Helped Anyone?

A MyPrurigoTeam Member asked a question 💭
Louisville, KY
October 29, 2024
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Answer Summary

Members shared mixed early experiences with Nemluvio for prurigo nodularis, with one member reporting zero itching after the first injection... Read more

Members shared mixed early experiences with Nemluvio for prurigo nodularis, with one member reporting zero itching after the first injection while others noted it took two or more shots to see improvement, with some still waiting for relief after weeks of use. Several members described severe cases covering their bodies with over 100 lesions, and many suspected their PN was triggered or worsened by COVID-19 or mRNA vaccines, though experiences varied widely. A recurring theme was the importance of patience with biologic medications, managing expectations around healing timelines, and the relief of finally having treatment options beyond topical creams after years of searching for answers.

A MyPrurigoTeam Member

OMG! How horrible! It is a nasty disease. I was susupicious about getting those shots. I thought it was too early but I was traveling and it was required. No one wouls admit it was caused by the covid shots but what could be done now? I won't take any immunizations now.

October 31, 2024
A MyPrurigoTeam Member

The flu, nor the Covid mRNA is a live vaccine. I want to put this correct information out here for anyone reading this and has been told they are live, neither is live. I’ve been instructed, heavily, buy the manufacturers of both Dupixent and Nemluvio to take my yearly flu vaccine. Both asked to be notified before I do so it can be kept in my med file, but highly, highly recommended I get a flu booster while using their biologic medications. However, most importantly neither the flu or COVID mRNA is a live vaccine. 🤗

November 17, 2024
A MyPrurigoTeam Member

I have 2 collegues that developed severe inflammation in the area where they had to do an orthopedic operation, both 2w after having there 5th covid-vaccination. The orthopedics told them both that they had never seen such an inflammation inte the healing area before these rather common orthopedic operations (hip replacement and lumbar disc ectomy). Both my collegues are pro-vaccines but now they started to get scared.

November 16, 2024
A MyPrurigoTeam Member

Mine was a direct outcome of the mRNA vaccine. I’ve never had Covid but this began immediately follow my 5th vaccine injection. The CDC does have positive case studies of this mRNA protein causing PN. I guess that could be from the vaccine or from having Covid. It’s the same protein, just the vaccine is a dead virus.

November 16, 2024
A MyPrurigoTeam Member

Absolute game changer! Been struggling for over 2 years. Zero, yes zero itch after first injection!

October 30, 2024

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