Oh, I hear ya and I must say in my long life of 76, I don't think I have experienced so much excruciating pain as I have with this Reclast infusion. It's so horrible that I will just keep taking my calcium w/D3 as I never want to go through this horrible experience ever again. I had mine Monday, & today starting to feel as bad as the first symptoms of it! I have been drinking lots of water, and I have no appetite which can be good or bad. My Nemluvio injection is Sunday, and I am very leary of taking that after reading your experience. IMO, these so-called doctors, specialists, etc. need to coordinate and get their act together because it is our lives they are messing with! I am calling my PCP (aka NP) and contact Nemluvio concerning this. & I would contact my Derma, but she hasn't been much help. Also, my sleep has been very much affected, and I am beyond tired. My joints and muscles are just achy breaky &, like snap, crackle, and pop too. I have felt like a guinea pig going through this rare, no cure disease, PN, Lichen Chronicus Simplex, and Seb Derm among all the great old age ailments! No kidding, I too would like to be put in a medically induced coma! Thank you for your great input on this horrible Reclast. I thought, hmm I am the only one of out of so many dealing with torture test so my bones don't fracture easily! Thank you for your prayers, and I wish the best for you, others, and myself!

Thanks all of you on your response about reclast. Never again! They should tell you what to expect but too busy. Even my bones hurt! 🫂

Medications while providing many benefits and healing, they also have side effects and drug interactions. The physicians have what I call the drug bible: The Physician Drug Reference manual. It also is available as a website for their cell phone and I think an app for them to use as well. Nemluvio had recently been approved by the FDA. There still could be side effects or drug interactions that have not been discovered as of yet. I have found the website drugs.com has been very helpful for me with medications. My thought is when a physician is prescribing a new medication I ask for side effects and drug interactions as I take multiple medications. My mail order and local pharmacist have also been instrumental in identifying potential issues. I haven'ta policy for myself to be my own personal advocate. I don't view it as extra tasks; I view it as : I'm worth it, my health and well being as well as safety is more than worth it! Please take care of yourselves; you are precious. All the best. 🤗❤️

I had a terrible reaction to reclast too. Every bone, muscle hurt. I couldn't sleep. We have to be our own doctors, look up on the net the side effects of these drugs. But say no to your doctor? I don't think mine would like it. Tough! I have had 2 scripts given to me recently with sulpha, right on my records, allergic. They don't want to take the time to read. You are so right!

I recently had the same reaction to the Reclast! I had my Nemluvio injection on a Thursday, then my 1st Reclast infusion on Friday. A few hours later, I was SOOOO SICK I was afraid to move! After contacting doctors, pharmacist, even the makers of the drugs, I finally called the speciality pharmacist who delivers my Nemluvio. She said the 2 drugs should never be taken together. Not only is the Reclast hard on your body, it blocks the Nemluvio from doing its job. So my PN hit with a vengeance! I was told the only thing I could do was to drink as much water as I could to try to flush my body out. Well you know how well that water stayed down. I called my doctor one morning and begged her to put me in a medically induced coma!!! I was extremely serious about it!!! After about a week of no sleep, trying to get down crackers, broth, toast and Coke, I finally started to feel some relief. It took about another 2 weeks before I got my strength back and could eat a regular meal. I WILL NEVER TAKE THAT RECLAST AGAIN!!!
Carla and Cathy, my heart, soul and prayers are with you both. Why don't more doctors know about PN and the effects of the medications? My Urologist contacted my Demonologist to find out as much as he could about PN, so he can research any meds he gives me to make sure they can be taken together. A PA at the Urgent Care clinic I go to, started asking me questions about PN and taking notes of what I was saying. Said he needed to find out everything he could about it in case he ran across another person who has it. I was in the hospital for a week in February. No one there had even heard about PN! I missed my injection that week because they won't contact my Dermatologist about it. So of all the doctors I see, only 2 have shown any interest in researching this condition!!! It's so sad that they don't care. They would rather miss diagnose a patient, than take the time to figure out how to help us. Prayers to everyone.💔🙏🙏🙏🙏🤞🤞🤞💙💙💙💙