So last night I decided to count my Prurigo nodules......154 on my arms, legs, ankles, feet, face, fortunately not my scalp, yet. Is that a lot?

Janice, not at all! I believe that knowledge is power. I have my go to online resources when I have a question regarding a new condition. I feel that doing that allows me to be better prepared for my myriad of physician appointments.

Janice, I think that it takes time to identify triggers. (at least it did for me). So far, after I wrapped my head around the diagnosis, educated myself on treatments, only then did I begin to identify triggers. So far, I have identified heat, humidity, and stress. Stress has the number 1 spot. I often wonder if the regime I have practiced for years for dry skin helped me when PN appeared. I also have thought about if the medications I take for Sjogren's has helped with my management of the disease; I think it has. I have found reporting bodily changes or new symptoms have helped too. Take care of yourself . All the best.

Judy, I read the article on this website "Prurigo Nodularis and the Scalp." It recommended some shampoos. I decided to try Head and Shoulders Bare. It doesn't have any additives and comes in soothing hydration and anti-itch. There may be a third type as well. I use it daily. I found it healing to my scalp. My dermatologist prescribed Derma Smooth which I use for flares. I also have Clobetesol liquid 0.05% for during the day. I've noticed that I tend to have flares when I'm under a lot of stress or when it is hot and humid. My initial treatments included steroid injections into the nodules, but when there were too many nodules, my dermatologist prescribed topicals of various types. It was trial and error until we found what works for me. If you are experiencing excessive itching, my dermatologist recommended N-Acetyl-Cysteine supplement (600 mg twice per day). NAC completely stopped the itching for me. I take it every day without fail. I deal with PN by sticking to a routine with consistent use of products. I also follow the dermatologist's recommendations faithfully. No skipping days or steps. ❤️🤗

I'm sorry. I think the scalp would be very difficult to handle.