I totally agree, Marc. I’m sure that, together, the people on ‘My Prurigo’ could write a dossier on the disease and make a much better job than any of the ‘so called’ experts. When I tried to get some information from a dermatologist, he whined, “Why do you ask me these questions…. I don’t know the answers!”
The reason I was asking the questions is that he was a consultant dermatologist and was expected to be an ‘expert.’
Nodular Prurigo seems to be a little known disease which is not rated as interesting by the people in the field of dermatology. It’s sad.
Patricia.

A lot of victim blaming seems to accompany this disease.
I've got nodes on the bottom of my feet. As if I go around scratching the bottom of my feet.
TBH, after dealing with this for only a few months, I feel I have a better handle on this disease than most doctors.
That's not idle bragging. I have two different Auto Immune diseases and a controllable but incurable cancer so I have been doing lots of research these last few years.
PN is just my newest affliction.
Prurigo is poorly understood (clearly) and doctors hate admitting when they don't know something. So they throw stuff out there and blame it on you rather than their lack of knowledge and tools.
The disease drives the nodes and the itch. It is not the other way around. Anybody who says otherwise is ignorant. Scratching will worsen, of course.
But IT IS NOT YOUR FAULT.
The other thing I want to add is to be aggressive in treating the nodes. There are some excellent topical Rx creams/ointments: Triamcinolone, Clobetasol, Tacrolimus, and Opzelura are the weapons in my armory. Two are steroids, one is a JAK inhibitor.
Talk to your doctors - ask questions, demand options.
You are a victim of this disease.
Do NOT let yourself be victimized by it.

I have said time and again we don't cause them. They erupt from below. They don't always even itch but hurt.

Same here bumps pop up hurt then itch, seems to me it’s in the wrong order. I feel like my bumps don’t heal because of the itching.

Patricia, I agree with the stress, I also have dealt with stress all my life and I was always allergic to insect bites even as a child but didn’t develope PN until 2004.