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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What is the protocol for being tested for comorbitities? It seems that many tests should be performed by family doctor or dermatologists

A MyPrurigoTeam Member asked a question 💭
Kelowna, BC
January 5
 · 
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11 Conditions Related to Prurigo Nodularis Read Article...

Answer Summary

Several members described their lengthy journeys to obtaining proper diagnosis and testing for comorbidities related to prurigo nodularis,... Read more

Several members described their lengthy journeys to obtaining proper diagnosis and testing for comorbidities related to prurigo nodularis, with one member sharing how their PCP advocated strongly for them and ultimately connected them with a specialized rheumatologist at a Philadelphia teaching hospital who conducted extensive testing including nuclear medicine studies, bloodwork, and skin biopsies that finally led to diagnoses of Sjogren's disease and later PN. Members exchanged detailed experiences with comprehensive patch testing, with one member sharing results from over 200 allergen tests across cosmetic, metal, plastic, and rubber series that showed mostly negative results except for two weak positives. A recurring theme was the critical importance of self-advocacy and persistence in requesting appropriate testing when physicians don't initiate comprehensive workups, with members encouraging each other to stay on top of their own care and find specialists who take their symptoms seriously.

A MyPrurigoTeam Member

There are some tests listed I can't get any doctors to do, yeast, fungus. It's upsetting. Good luck!

January 6
A MyPrurigoTeam Member

25. triglycidyl isocyanurate Negative (-)
– Rubber Additives Series R-1000
1. tetramethylthiuram 1.0 pet Negative (-)
2. tetramethylthiuram monosulfide 1.0 pet Negative (-)
3. tetraethylthiuram disulfide 1.0 pet Negative (-)
4. dipentamethylenethiuramdisulfide 1.0 pet Negative (-)
5. n-cyclohexyl-n-phenyl-4-phenylenediamine 1.0 pet Negative (-)
6. N, N-diphenyl-4-phenylenediamine 1.0 pet Negative (-)
7. N-isopropyl -n-phenyl-4-phenylenediamine 0.1 pet Negative (-)
8. 2-mercaptobenzothiazole 2.0 pet Negative (-)
9. n-cyclohexyl-2-benzothiazyl sulphenamide 1.0 pet Negative (-)
10. dibenzothiazyl disulfide 1.0 pet Negative (-)
11. 2- (4-morpholinylmercapto) benzothiazole 1.0 pet Negative (-)
12. N, N-diphenylguanidine 1.0 pet Negative (-)
13. zinc diethyldithiocarbamate 1.0 pet Negative (-)
14. zinc dibutyldithiocarbamate 1.0 pet Negative (-)
15. N, N-dibeta-naphtyl-4-phenylenediamine 1.0 pet Negative (-)
16. N-phenyl-2-naphtylamine/(phenyl-beta-naphtylamine, PBN 1.0 pet Negative (-)
17. Methenamine/ (Hexamethylene tetramine) 2.0 pet Negative (-)
18. Diaminodiphenylmethane 0.5 pet Negative (-)
19. Diphenylthiourea 1.0 pet Negative (-)
20. zinc dimethyldithiocarbamate 1.0 pet Negative (-)
21. 2,2,4-trimethyl-1,2-dihydroquinoline 1.0 pet Negative (-)
22. diethyl thiourea 1.0 pet Negative (-)
23. dibutyl thiourea 1.0 pet Negative (-)
24. dodecyl mercaptan 0.1 pet Negative (-)
25. N-(cyclohexylthio) phthalimide 1.0 pet Negative (-)
26. thiourea 0.1 pet Negative (-)

January 6
MyPrurigoTeam

What tests are typically done to check for comorbidities with prurigo nodularis?

You're right that testing for comorbidities usually involves both your family doctor and dermatologist working together. The protocol typically starts with your primary care provider or dermatologist ordering blood tests to screen for Show Full Answer

What tests are typically done to check for comorbidities with prurigo nodularis?

You're right that testing for comorbidities usually involves both your family doctor and dermatologist working together. The protocol typically starts with your primary care provider or dermatologist ordering blood tests to screen for conditions that may be connected to PN.

Common tests include:

* Complete blood cell count to check for infection
* Kidney function tests
* Liver function tests
* Thyroid function tests
* Hemoglobin A1c to check for diabetes
* Screening for hepatitis B, hepatitis C, and HIV/AIDS

Your dermatologist will perform a physical exam and may do a skin biopsy to confirm PN and rule out other skin conditions. They might also use dermoscopy to examine your skin more closely.

If allergies are suspected as a trigger, you may be referred to an allergist for patch testing or other allergy tests.

Your primary care provider is often the starting point for bloodwork and can refer you to specialists as needed. The dermatologist typically leads the diagnosis and treatment of PN itself while coordinating with other specialists to address any underlying conditions that might be contributing to your symptoms.

January 5
A MyPrurigoTeam Member

Hi Elle! Prior to be diagnosed with PN, I had been diagnosed with several autoimmune conditions. My PCP suggested that I have a consult with a rheumatologist. I had consultations with 6 rheumatologists without a diagnosis and treatment plan. My PCP fired the rheumatologist in my presence and recommended that I travel to Philadelphia to have a consultation with a rheumatologist. My closest friend and I reviewed rheumatologists in the 3 teaching hospitals that had an associated medical schools. I chose one based on my research and patient reviews. My first visit was somewhat lengthy. The rheumatologist requested all of my laboratory studies results for not nfive years prior. She also requested any diagnostic imaging studies. They requested time to complete an extensive review. The rheumatologist ordered current laboratory studies to be completed and also ordered a nuclear medicine study to be completed of my salivary glands. It needed to be performed at a facility of her choice. In conjunction with a through physical examination of me. The salivary gland study showed that my salivary glands were non functioning . Quite a The laboratory studies didn't provide any additional information. The rheumatologist informed me that their tentative diagnosis was Sjogren's disease based on my physical and salary gland study. They began treatment for Sjogren's and added/ adjusted medications throughout the years. My immune system did not convert to Sjogren's until 2019 based on a photosensitivity reaction prompting a skin biopsy and current immunology studies. I was fortunate that they rheumatologist was persistent and focused on my treatment plan. In 2023, my skin displayed a red , itchy rash with some small bumps. A skin biopsy was performed and the diagnosis was PN. Quite a circuitous and lengthy journey, bot so worth it!

January 6
A MyPrurigoTeam Member

Yes, you sure do! It's so worth it though!

January 9

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