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I have had this disease since 2021 its a nightmare. I have the worst scars on my body..and the funnel type sores are so bad omg

A MyPrurigoTeam Member asked a question 💭
Buckeye, AZ
September 16
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A MyPrurigoTeam Member

My back has been itching non stop and now I’ve broken out on my buttocks (excuse me didn’t know how else to word it) I’m so miserable . I shower everyday and still feel yucky. I hate to be so negative about this but, I know you PN sufferers will understand.

September 20
A MyPrurigoTeam Member

Yes ty for your answer.now is this a life time thing.? Does it ever go away

September 16
A MyPrurigoTeam Member

Hi Camille! My dermatologist reported that PN can flare and then calm down. They told me that stress aggravates PN. I have found by sticking to my recommended treatment plan that it keeps the disease quiet and manageable.

September 19
MyPrurigoTeam

Living with PN since 2021 sounds absolutely exhausting, and what you're describing — deep, funnel-like sores — sounds like ulcerated nodules. These happen when larger nodules get scratched or irritated enough to break open, creating deeper wounds with more significant skin loss. It's one of the more painful and distressing Show Full Answer

Living with PN since 2021 sounds absolutely exhausting, and what you're describing — deep, funnel-like sores — sounds like ulcerated nodules. These happen when larger nodules get scratched or irritated enough to break open, creating deeper wounds with more significant skin loss. It's one of the more painful and distressing parts of PN. The scarring you're dealing with is also really common with PN. After nodules break open and heal, they can leave behind:

- Dark spots or discoloration where nodules once were
- Raised or sunken scars from repeated scratching
- Lighter patches where skin pigment has been lost

These marks can feel like a constant reminder of everything you've been through, and that's genuinely hard to carry. One important thing to watch for with open sores is signs of infection, like swelling, warmth, oozing, or fever. If any of those show up, reaching out to a healthcare provider quickly is really important.

Working closely with a dermatologist to get the itching under better control can help slow down new nodule formation and give existing sores a better chance to heal. You deserve relief — please don't give up on finding the right treatment plan.

September 16

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