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A MyPrurigoTeam Member asked a question 💭
Albuquerque, NM
January 27, 2023
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Answer Summary

Members bonded over the devastating reality of prurigo nodularis on the scalp, describing unbearable pain, intense itching, chronic... Read more

Members bonded over the devastating reality of prurigo nodularis on the scalp, describing unbearable pain, intense itching, chronic inflammation, hair loss, scarring, and sleep disruption that many said is worse than any other location. Several members shared strategies that brought them relief, including Head and Shoulders or tea tree oil shampoo, cortisone ointment or injections, Calcipotriene ointment, clindamycin solution, keeping fingernails short, avoiding scratching at all costs, staying hydrated, using cool water or unscented products, and for some, Dupixent injections. A recurring theme was the emotional toll of living with visible scars and bald spots, the frustration of misdiagnoses like folliculitis or seborrheic dermatitis, and the fierce determination to keep trying new treatments while supporting one another through the exhausting cycle of flares and temporary relief.

A MyPrurigoTeam Member

When my scalp was inflamed my dermatologist diagnosed me with Folliculitis and prescribed this little dabber like you use in bingo it's got liquid clindamycin solution in it and you dab your scalp. I used to pick and scratch all day whenever I was awake. Can you believe right now I have no sores on my scalp and it rarely itches now and my bald spot has about 2 inches of new hair. But PN might as well be folliculitis because that's were they are born.

March 26, 2023
A MyPrurigoTeam Member

Claire, all the season blue type shampoos made mine worse also. I found not shampooing my hair is better. When I do shampoo I keep away from scented shampoos. I will use unscented conditioner or a light conditioner so I can brush my hair easier. Stay hydrated and take something to sleep. I take advil PM. Doesnt make me groggy. Also. Night time inflammation is higher, so I make sure I take ibuprofen And I take time release tylenol. Walmart has a brand of liquid itch relief similar to benadryl. I find it works the best so far. It's not heavy on my scalp. Aspercreme works but can be heavy so I use a qtip. Bactine in the pump bottle has linacain, it has also been a great reliever of pain. I have a slew of medication and mediated shampoo. Clindamycin. Topical steroids. I've had injection steroids. It all made it worse. I tried acutain, which helped until it dried my skin and scalp out so much that it added to the problem. That's all I have atm. Sleep is the best healing along with no junk food and stay hydrated. I hope this helps. I do alot of head under the faucet with warm to hotish water to take the edge off

April 3, 2023
A MyPrurigoTeam Member

I use a dandruff shampoo on the two nodules on scalp.
If there's a flare up and they bother me I'll put a dab of that steroidal cream on, then again I'll spray a little liquid skin on a finger, and seal it so it doesn't rub off.
Seems to keep them at bay.

April 29, 2023
A MyPrurigoTeam Member

Pillow heat irritates my scalp. Especially in the nape ares.
Try using a shampoo with coal tar 2-3 a week and your favorite shampoo the other days. Wash your hair daily during a flare up. Avoid any hair products that contain alcohol. And use cool to warm heat if you blow dry.
Hope this helps!

July 10, 2023
A MyPrurigoTeam Member

Oh nooo… what’s the side effects you are having?

March 27, 2023

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