Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyPrurigoTeam Member asked a question 💭
Arizona City, AZ

Ive had this PN over 30 years, everyyear or whatever same breakout over and over. Now I'm getting massive new ones, My PCP has already given up, on trying to heal them. She sent me to the wound clinic, which I went about 5 weeks to. Guess what? they quit me too. Told me to find a derm, Im on medicaid, and the soonest someone will get me in is 8-9. So I just have open wounds no one is tending to, becuz theres also a HHC shortage here. Nothing is closing them, and they appear the skin is already… read more

May 20, 2023
 · 
Reactions

Answer Summary

Members rallied around someone struggling with worsening prurigo nodularis after 30 years, expressing frustration that multiple providers had... Read more

Members rallied around someone struggling with worsening prurigo nodularis after 30 years, expressing frustration that multiple providers had dismissed them despite open, blackened wounds, with many sharing similar experiences of being passed between doctors who admit they simply don't know how to help. Several members offered their own hard-won strategies, including high-dose topical steroids that help dry lesions if left unpicked, exploring histamine intolerance as a potential trigger, and one member noting that opening nodules and applying alcohol provided relief despite knowing it's not recommended. A recurring theme was the emotional toll of visible lesions that attract insensitive comments from strangers, the financial burden of endless bandages, and the deep anger and disbelief that open wounds are being left untreated in a system that should prioritize healing.

A MyPrurigoTeam Member

Hey, Kathy..with you on the bandages. Weird thing is-
It only affects lower legs, arms,upper beck and face.
It's so unacceptable, unattractive

May 29, 2023
A MyPrurigoTeam Member

I had a big bunch of itching, hurting nodules on my hip. I know it's a no no but I opened them, lots of fluid.Did that hurt but what else is new? I put alcohol on them, it seemed to take them away. Doctor did a biopsy, nothing really showed.

May 27, 2023
A MyPrurigoTeam Member

I have had PN for about 18 years at first nobody knew what it was and finally my doctor sent me to a dermatologist they did a biopsy and the biopsy came back as PN now my dermatologist has prescribed the highest dosage cream of steroid and it works somewhat it does dry them up and if I don't pick them and sometimes I do because they itch they bleed but I think the cream is helping as long as I don't pick at them what new ones do come I wish they would find a cure for this it has changed my whole life

July 20, 2023
A MyPrurigoTeam Member

I am appalled that you are not receiving care for your wounds. I truly have no words. As a nurse of many years I am at a loss to understand when open wounds began being ignored. Do they say why they dismiss you? I already asked this but have they given you antibiotics. I am one of those JIC people who would like to see a picture, lol. I am so angry for you!

June 14, 2023
A MyPrurigoTeam Member

Have they given you antibiotics, topical or oral? That they are black is concerning.

June 13, 2023

Related Questions

View All
A MyPrurigoTeam Member asked a question 💭
Spain

A MyPrurigoTeam Member asked a question 💭
Texas City, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In