My nodules are basically open sores on both sides of my entire butt cheeks that simply will not heal . I can’t cover them because nothing stays on that area. The skin around the nodule open hole is so red and thick that I know I will be scarred for life
I will never be intimate again because I’m too embarrassed to get undressed .
I do not sleep at all anymore . I’m physically and emotionally exhausted
I’m in pain all the time . I can’t even sit down .
My muscles and joints hurt all the… read more
Answer Summary
Members rallied around someone struggling with painful nodules and scars, sharing the isolating reality of living with prurigo nodularis and... Read more
Dupixent helps but it takes a few shots like 3or4 months and then there are the white cotton gloves and keeping nails short and do not touch open wounds ever prednisone helps as does many many dr visits do not cause self harm by itching try to talk yourself down from the itch and yes it can take hours to do so I personally just tell myself to stop over and over
I'm sorry you're going through such a tough time. For flattening and whitening scars, treatments like silicone gel sheets, topical scar creams, or light therapy may help, but results can take time. To manage pain, options like ice packs, CBD creams, or prescribed medications may provide relief. Keeping hands off at night Show Full Answer
LauraSine thank you so much .. I will keep you in my thoughts and prayers too !!
Hi lesa, I hope you are comfortable today as you can be ,considering. No I'm not one of the lucky ones, I'm eyeballs deep in this mess too. Everyday is a mystery. Hang in there little lotus flower.
I can't seem to get more pics to load than I at I time? But you get the idea!