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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have any of you had terrible reactions to dupixent? My last 2 I am so sick I can't begin to describe.

A MyPrurigoTeam Member asked a question 💭
Berea, OH
April 2
 · 
Reactions

Answer Summary

Members responded to someone experiencing severe reactions to Dupixent with a mix of personal experiences, ranging from those who had no... Read more

Members responded to someone experiencing severe reactions to Dupixent with a mix of personal experiences, ranging from those who had no issues at all to others reporting side effects like muscle soreness, vision problems, and possible allergic reactions. Several members recommended switching to Nemluvio as an alternative biologic for prurigo nodularis, with one member sharing that the switch made an amazing difference, while others suggested patient assistance programs to help with costs and advised working with a knowledgeable doctor who takes concerns seriously. A recurring theme was the importance of persistence, self-advocacy, and not giving up on finding the right treatment regardless of age, with members offering both practical solutions and heartfelt encouragement to keep fighting for quality of life.

A MyPrurigoTeam Member

I have been on Dupixent for 2 years and have never had a negative reaction to it. It has worked really well for me and I rarely have PN sores or itching any longer. I feel very fortunate and hope that you are able to find any answer to your condition soon.

April 2
A MyPrurigoTeam Member

Thanks, Marc. If they say nemluvio and can space out payment, I will go. I am healthy otherwise and want to do somethings!

April 4
A MyPrurigoTeam Member

I am having several side effects. Muscle soreness, and vision problems, maybe due to dry eye. My doctor has reduced my shots to every three weeks to see if that helps. If not, I will try a different medication. So far, I have only experience mild itching. I am going to continue using Dupixent every three weeks for a period of time to see if things improve.

April 3
MyPrurigoTeam

Have you experienced severe reactions to your last two Dupixent injections?

I'm sorry you're going through such a difficult time with these reactions. While Dupixent (dupilumab) is FDA-approved for prurigo nodularis, it can cause side effects that vary from person to person.

The most commonly reported side effects Show Full Answer

Have you experienced severe reactions to your last two Dupixent injections?

I'm sorry you're going through such a difficult time with these reactions. While Dupixent (dupilumab) is FDA-approved for prurigo nodularis, it can cause side effects that vary from person to person.

The most commonly reported side effects include:
- Injection site reactions
- Common cold symptoms
- Muscle pain
- Diarrhea
- Throat pain

However, if you're experiencing severe symptoms that are making you feel extremely sick, this needs immediate medical attention. Your reaction may be more serious than typical side effects.

Please contact your doctor right away to report what you're experiencing. They can assess whether you should continue treatment, adjust your dosage, or switch to a different medication. Don't wait to reach out - severe reactions warrant prompt medical evaluation.

Your healthcare team can also help determine if there's an alternative treatment option that might work better for you, as there are other medications available for prurigo nodularis.

April 2
A MyPrurigoTeam Member

I applied for programs and they accepted me . Still fighting my new insurance company. As I moved to a different state

April 20

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Are any of you getting sick all over? Sore joints, head aches?

A MyPrurigoTeam Member asked a question 💭
Berea, OH
October 26, 2023

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