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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 29, 2024
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Answer Summary

Members came together to discuss how to manage nodules from prurigo nodularis (PN), with the general understanding that there is no universal... Read more

Members came together to discuss how to manage nodules from prurigo nodularis (PN), with the general understanding that there is no universal cure and that treatment requires a lot of patience and trial and error. Several members shared helpful products that worked for them, including sulfur soap, sulfur creams, Derma Smooth, Clobetasol ointment, Head and Shoulders Bare shampoo, and NAC supplements to reduce itching. A recurring theme was the emotional toll of living with this rare and mysterious condition, with members encouraging each other to avoid picking or scratching due to risks of infection and scarring, follow prescribed treatment plans, and lean on the community for support.

A MyPrurigoTeam Member

About the nodules? The truth is that there are different types just as there are different strokes for different folks!

August 31, 2024
A MyPrurigoTeam Member

DonnaDownng ,& Jessicatoonkel
Hope U R both doing ok
Holiday weekend arriving as of tomorrow Yeah!
That is the million $$ question Jessica
Like Donna remarked there R no dumb or unimportant questions on this forum
We R all learning as we go & everyone even doctors R baffled by this rare condition
How do we get them 2 disappear 4ever?
Or @ least go into full remission
Even the specialists dont have an answer for that question
Is it even possible as it seems some members of this group have suffered with it 4 many years unfortunately 😫
One day @ a time is all we can do & hope 4 more research into this dastardly illness/ disease so we all get some answers & possibly one day a cure
Have a nice Labour day weekend
Hard 2 believe the official summer season is almost over
In Canada we celebrate with as well
Fall is my favorite time of year especially weather wise & the leaves all changeling colour 🍁
It's so beautiful & lovely
Fresh crisp air
No more humidity thank goodness
We have our Thanksgiving in October whereas I know in the USA U celebrate it in November 🦃
Take care ❤️
Bye 4 now

August 29, 2024
A MyPrurigoTeam Member

It depends on where the nodules are located. I get them on my scalp. What I find challenging is that I can feel one which is quite hard. Another one can Pop up and be sore to the touch and softer. I treat them the same way. Derma Smooth, Head and Shoulders Bare, and patience. I also get them on my lower legs near the ankle. Those I treat with Jukebox soap and Clobetasol ointment 0.05%. Patience and NAC twice a day.

August 29, 2024
A MyPrurigoTeam Member

Hello Jessica, nothing dumb about your question. I still have my first Nodules and it will be a year the 4th of September.
I have started using a cream with sulfur in it. I have seen great improvements, but I am not as bad as others. Fortunately I caught mine early.

August 29, 2024
A MyPrurigoTeam Member

With PN it takes a tremendous amount of patience. It came overnight but like an unwanted guest,it won't leave that fast.
At this point with all the unanswered questions,it boils down to trial and error for each individual.

September 9, 2024

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